Thursday, May 19, 2011

Aaron Update Thurs, May 19th

Ups and downs today.

Ups: Aaron is off all his blood pressure medication. He gained 20 grams in one day. He had his first poopy diaper (Ronny was there for that one!). He is taking more glucose which means he is using it to grow and they need to keep up on it. The swelling in his upper body seemed to go down today.

Downs: The NNP approached Ronny today with our first setback. I haven't had a chance to really go through it yet with him as he had to rush off today so he'll feel me in more tonight. Aaron seems to be having a hard time making new blood. His bone marrow seems to be falling short in replacing the blood that is taken for lab work each day. They mentioned it to me in passing yesterday but didn't seem to be concerned but if they approached Ronny today to discuss it, it seems to be more so today. He is getting blood transfusions for the time being to replace the blood but his body needs to pick up and make it on its own here at some point.

I'll go in tonight and see what else I can find out but that is the news for now.


Jen said...

Thank you for the update! I feel like I'm stalking you because I check your blog and FB throughout the day looking for updates. We are fighting and praying for this little guy daily. What a fighter he is! It must be frustrating for you, though, to have to take care of yourself and not be able to be with him 24-7. You are an amazing woman!