Edema to the Extreme

I originally was not going to post this but now that our kids have seen him and now that really he is even bigger I decided to post it. This is a picture of Aaron about a week and a half ago. Since this was taken he has added another pound of fluid under that already taught skin. The diapers do not fit around his belly and depending on the day you may or may not see a belly button or even his eyes open. When we rotate him one side of his face will get the majority of the fluid and he won't be able to open that eye but will try to get the other open. He still responds when we are there talking to him which tells us he is still fighting to be here. What a will to live this little one has. He truly inspires me to get through each day!