Thursday, August 04, 2011

Kindergarten, Diapers, and Ward Fast

Benjamin started Kindergarten this week. His first day of school we walked over together. We entered the play area and waited for the teachers to come outside to blow the whistle. I looked around and saw many children playing, some standing on the outside of the equipment to shy to jump right in, and others clinging to their parents legs not wanting to separate. Then I look over to see Ben pounding on the door and begging to be let in because surely it was time to start! Each morning after the big boys head off he recites the time on the clock to me every 2 minutes wanting to know how much longer he has to wait to head to school. I wonder how long this will last.

Ben is in the afternoon session which makes my daily visits tricky and way too short. During the week I drop Ben off at school and head straight to the hospital. I am only able to spend about an hour before I need to head back down to pick them up at school. Today I read to Aaron, changed his diaper, and helped readjust his position. He is not a big fan of the repositioning. He opened he eyes up, gave us the evil eye, stuck his tongue out, and then de-stated and shunted. I don't mind the "look" or the tongue, but the de-stats and shunting I mind! He usually comes right back down within 15-20 minutes but I would rather we didn't have to turn him up to 100% on his O2. Before leaving I had a quiet talk with Aaron. I told him how important it was for him to pee. His body is so stretched and full of fluid it hurts to think of how much he is suffering inside.

Our ward Relief Society secretary sent an email out this week that mentioned the ward was asking members to fast for Aaron and another young man with cancer this coming Sunday. I was very touched. I mention this so that those who wish to, can join with us.


Becky said...

We will join you. You are an amazing person Denise and I am awed by your strength.
Your kindergartner is a crack up! I could totally visualize his frustration! If only that enthusiasm was still alive in 4th graders.