Wednesday, September 28, 2011

Waiting....

Today has been another day of waiting on the cardiologists. They still have not "gotten back to us". We have two n.p.'s today, one called and did a great job of spelling out exactly what our concerns, questions, and frustrations are. Both have called repeatedly to see if they were even going to come over today.

I had a great conversation with many of the staff we have come to know and love, our nurses, our n.p.'s, our March of Dimes and Parent to Parent coordinators. I explained that our frustrations of not having the information we need from cardio was delaying our decisions on what direction to take with Aaron's care. We are all on the same page on our side of the bridge, we just can't seem to get those on the other side to understand that those answers are extremely time sensitive and every minute that ticks by is causing an undue burden on Aaron and on all those who take care of him who are anxiously waiting.

2 comments:

RachelHixson said...

Tonight around 7:45,I was reading and thought of you all...Mormon 8:22...please let's stay in touch. Our talk today was so sweet and my heart is with you tonight.

Kristen said...

We love you guys and think and pray for you many many times during the day.