Slight Improvement

Yesterday Aaron was requiring 100% oxygen on his respirator and the shunting difference on his pre and post pulse ox was anywhere between 10 and 20. Today his O2 stats are hovering between 38 and 60. The difference on his pre and post is anywhere between 0 and 10. Those two things have improved. Last night he was weighed and had gained over 100 grams which is troubling. We know its mostly water and air. He had a 42 gram urine diaper this morning and another 18 gram this afternoon. He stopped processing his feedings this afternoon so I asked the N.P. to come and look at him. His belly has once again swelled up and a KUB was done. It looks like its air so they stopped his feedings and reinserted an Anderson tube to suction off the air. Taking away his feedings means his sildenafil also gets removed. We are praying the flolan that he gets through his IV will make up for the missing sildenafil. I asked when they would do another echo and sounds like they want to wait another day or two.

Throughout our journey we have had so many wonderful highs and devastating lows. Throughout the low times I know I was nervous and worried. Looking back now though, I can't tell you a time that I was more scared and more worried than I am now. I don't know if its because I have learned to watch the numbers and know their meanings or if its because I have held my son and have physically felt the joy he brings to me. When Ronny was told last night that we should bring the kids to see Aaron more my heart broke not only for Aaron but for my other children. They have weathered this storm with so much courage and I can see they truly love their brother. My faith remains in the blessing Ronny gave to Aaron yesterday and the in the Lord who I know watches over us.